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More Than Just Words

Have you ever had a burning question about growing up with Cystic Fibrosis? Maybe you wonder how others handle their exacerbations. You might question what marriage is like with a terminal illness. Or maybe you are in a dark place and needing help understanding what is going on with my body, mind, or soul. More Than Just Words is here to hopefully provide you with those answers.

I’m one of those people that always has new questions. I constantly have questions for other people, from the food they eat, how they organize things, and how in the world they find energy to stay so active. Recently I had more personal inquiries come to my mind. The kind you don’t really feel comfortable asking just anyone. I danced around a few subjects with Tommy and tried to find a way to get the answers I searched for without feeling so awkward. The answer, start a blog with all kinds of questions and get all the awkwardness out there, not just for me but for all that want to know.

I’m a 30 year old cfer, I’ve been married for 5 years and have a 3 year old. My lung function is around 40% and some days I feel like I am just swimming against the current. I wanted to start this blog because sometimes I just don’t know how to cope. I wonder how others are able to live life in as normal a way as possible. How do they battle with their mental illnesses? How are they able to keep a relationship together? What motivates them to keep going? Then I thought surely others feel the same way. I’m hoping that by talking with other cfers and hearing their stories of struggles, overcoming, and coping, maybe it will help some of us with our daily challenges . You never know when you might hit a low point in life and just need a few words of wisdom from someone going through the same battle.

Our goal, as part of More Than Just Me, is to reach out to the community and find out what YOU want to talk about. We will take surveys occasionally to find out what you want as the next blog material. When we take the surveys remember, no topic is too big, small, or too deep. Nothing is off limits, except politics and religion, and nothing being said is meant to be offensive. This blog is meant for you, and with that there will be interviews of those with CF and without...consider this your outlet. We want to establish a blog that will create a positive change in us and those around us.

We are in this together.